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Social media communication in the digital medical space: A #cysticfibrosis és a #Asthma Big Data összehasonlító elemzése
143-180.Views:29In the environment of 21st century technology, the transformation of information acquisition
of health care and patients has had an increasing emphasis. Despite the earlier authoritative
doctor-patient relationship, a need for an equal, cooperation-based communication has emerged
and there are so many digital healthcare projects to achieve this (Koskova 2015).
Information acquisition on the internet has allowed patients that based on the increasingly
available medical information they acquire information about their condition, become part of
patient communities, ask for second opinions, and become committed helpers of their doctors in
their disease (Meskó et. al 2017).
This can be especially true for patients with rare diseases, where a diagnosis might take even
a decade, the patient needs lifelong condition maintenance and treatment, if it is available. While the proportion of patients with rare diseases is low compared to the whole of society, the number of such patients is approximately 30 million in Europe (EURORDIS), which means patients
and their relatives need not only a harmonized health care system, but extensive information so
that they can live with the rare disease with less difficulty.
The aim of our study was to present the options of information acquisition in the social
media, focusing on Twitter, via an interdisciplinary and social approach. In this study therefore
we carried out a Big Data based social media analysis based on #Asthma and #CysticFibrosis
databases of the Symplur corporation. This study results contain the complete online communication of 7 years (2012-2019) regarding these hashtags. The analysis has few levels including
semantic research, stakeholder and hashtag review, engagement, and the whole tweet activity
exploration. -
The Suppression of Discourse: The Hidden Internet Communities Related to the Alt-right and the US Presidential Elections of 2016
62-80Views:13I examine the US presidential election of 2016 and how hidden groups related to the alt-right
manipulated the social media with hoaxes and memes. I examine some of the media platforms
and forums where these contents mainly appeared during the campaign and I also present the
anatomy of the groups’ previous actions, and from these I attempt to demonstrate that their
efforts are coordinated and their methods have become more sophisticated in the recent years. -
Hungarian Videoblogger Networks Online
43-67.Views:23The web 2.0 phenomenon and social media – without question – not only reshaped our everyday experiences, but they have established an environment for new types of social practices and social actors. The demotization (Turner 2010) effect of such technologies has created entirely new fields where celebrities might emerge from: one of them is videoblogging. Many video bloggers gained great reputation through peculiar micro-celebrity practices (Marwick 2015, Senft 2012), and, as a result, became key figures in distributing ideas, values and knowledge in today’s society. These cognitive patterns are disseminated with a discursive apparatus that is largely based on social media activity, including posts, tweets, self-imagery and the videos themselves, which are tied to a certain logic according to environmental affordances, creating the possibility for fans to interact (share, comment, like, retweet etc.) with artifacts of the celebrity. This mechanism puts the celebrity in a so-called expert system (Giddens 1990) position as they provide adequate schemas of attitude, mentality or behavior. Most importantly, all of these public interactions are accessible for scholars to conduct scientific research. With the help of the SentiOne application this research attempts to reconstruct online networks of video bloggers based on mentions, which either occurred in an artifact (post, video description etc.) or in a fan comment. Apart from the network itself, SentiOne enables us to get insights regarding each individual connection established in it with different types of aggregated data.
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Peer support instead of community solidarity among people with psychiatric diagnosis: Examining an online, anonymous self-help website
10-33Views:30In our research, we examined the first social networking website in Hungary that was specifically and explicitly designed for people with mental health problems and their relatives, or for people interested in the topic. A unique feature is that in 2021, it will still be possible to register anonymously and post comments on the site. Our research explores the life situations of people diagnosed as psychiatrically ill based on the concept of the recovery model, and therefore a central question for us is how an online self-help, peer support group can contribute to the recovery of individuals. In addition, one of the main hypotheses of our research is that community solidarity towards people with a psychiatric diagnosis is very low at different levels of society, and therefore self-help and peer support, also provided by the site we are investigating, may be of particular importance for the people concerned. We assume that they are a group that is highly stigmatised and socially rejected. In the media they are typically either invisible or portrayed as violent, aggressive figures. The Covid19 epidemic situation has led to many people experiencing psychological difficulties because of quarantine or the long-term side effects of the virus itself, which have been thematised in the media, but we believe that the mechanisms of solidarity with those diagnosed as psychiatric patients have not fundamentally changed (see for example the first establishment of psychiatric hospital wards
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Online activities of Alzheimer Cafes in the 6 months preceding and following the coronavirus outbreak
42-64Views:58Alzheimer Cafés may play an important psychosocial supporting role in the life of people living with dementia and of their family caregivers by providing a community of understanding, inclusion, solidarity and mutual support. They can promote policy-, professional- and social discourses, the recognition of dementia as a social reality, and overall awareness of this complex challenge. They can also foster transdisciplinary collaboration among professionals as well as between professionals and lay people affected by dementia based on mutual understanding, catalysing the formation and operation of acting communities and networks of interest.
The active and purposeful presence and activities of Alzheimer Cafés on Internet platforms, in the increasingly prominent channels and fields of social discourse and community life in the 21st century, can be an important tool in the realization of these benefits.
This two-part paper analyses the publicly accessible online footprint and behaviour of Alzheimer Cafés from this perspective as measured by a list of 10 possible functions. It scrutinizes the realisation of possible benefits and advantages offered by Internet platforms between September 2019 and August 2020, with a special focus on technology-based adaptive responses to the coronavirus-outbreak midway through that period.
The first part of the paper (Kucsera – Holpert 2021) briefly overviewed the Alzheimer Café concept and its history in Hungary, presented the methodology of the study and the first half of the research results. This second part of the paper presents the rest of the results, and makes recommendations for making more effective use of the potential of online platforms to realise the goals.
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Online activities of Alzheimer Cafes in the 6 months preceding and following the coronavirus outbreak
19-41Views:46Alzheimer Cafés may play an important psychosocial supporting role in the life of people living with dementia and of their family caregivers by providing a community of understanding, inclusion, solidarity and mutual support. They can promote policy-, professional- and social discourses, the recognition of dementia as a social reality, and overall awareness of this complex challenge. They can also foster transdisciplinary collaboration among professionals as well as between professionals and lay people affected by dementia based on mutual understanding, catalysing the formation and operation of acting communities and networks of interest.
The active and purposeful presence and activities of Alzheimer Cafés on Internet platforms, in the increasingly prominent channels and fields of social discourse and community life in the 21st century, can be an important tool in the realization of these benefits.
This two-part paper analyses the publicly accessible online footprint and behaviour of Alzheimer Cafés from this perspective as measured by a list of 10 possible functions. It scrutinizes the realisation of possible benefits and advantages offered by Internet platforms between September 2019 and August 2020, with a special focus on technology-based adaptive responses to the coronavirus-outbreak midway through that period.
This first part of the paper, which briefly overviews the Alzheimer Café concept and its history in Hungary, and then presents the methodology of the study and the first half of the research results. The second part of the paper will continue to present the results, and will make recommendations for making more effective use of the potential of online platforms to realise the goals.
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What’s the matter? A text mining analysis of political topics and user engagement on politicians’ Facebook pages during the 2018 Hungarian general election campaign
94-123.Views:16The research investigates the way users interact with leading topics of the 2018 Hungarian
general election campaign on candidates’ Facebook pages. It expects that the prominent
(immigration, corruption) and campaign-related topics generate more user engagement, while
policy topics and mobilization content are less interacted. It also tests the theory of issue ownership
in relation with user engagement. These expectations are tested on a dataset that includes all
posts (38030 posts) posted by all candidates during the campaign (511 candidates). Topics
are identified by text mining methods. The study demonstrates that corruption, development
policy and campaign are highly engaged topics, while immigration was more interacted only on
opposition politicians’ pages since the followers of pro-government candidates engage less with
immigration-related content. The most surprising result is that a reversed issue ownership effect
can be detected since politicians are generally less successful with their own topics. -
Youth NGOs at home and abroad
216-231Views:21NGOs are now considered by social researchers to be a full member of society, and are increasingly visible in public awareness, media and vocabulary, which shows their growing influence and importance.
Their numbers are constantly growing, and their services and activities are expanding. However, in addition to the wide range of tasks and services, there are common features of NGOs that make them a completely separate sector. Their mission is to serve the public and the community, without profit-making being their primary objective (Bányai 1997).
The non-profit sector includes those organisations in society which operate as private institutions but in fact serve community purposes (Simon 1998).Since the range of activities of NGOs is very broad and it is difficult to draw conclusions from the whole, the focus of this short study is on youth NGOs.
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Health-related information gathering practices among outpatients
124-138Views:38Introduction: Obtaining health information is an important part of health behaviour. However, there is limited data available about information gathering habits of patients. Aims: To identify different patient groups according to their information gathering habits.
Methods: Questionnaire survey among potential patients in an outpatient clinic in Budapest. The survey consisted of the following domains: sociodemographic data; habits of visit a doctor; communications method with a specialist; use of technical devices.
Results: The survey was completed by 260 patients (36,2% men; 63,8% women). Patients primarily get medical information from their doctors, followed by the internet, where different websites and Facebook groups are the most common sources of information. Mostly they use the internet for checking their symptoms and complaints, however searching for data about their physicians and healthcare institutions are uncommon. Patients who are young, active workers, highly educated are more active, while elderly patients and widows search less information on the internet. Conclusions: There are socio-demographic groups who are underinformed by digital healthcare related issues. Audited websites and social media releases could play an important role in
the information gathering process of patients, and also supplement patient-doctor relationship.
