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Social media communication in the digital medical space: A #cysticfibrosis és a #Asthma Big Data összehasonlító elemzése
143-180.Views:53In the environment of 21st century technology, the transformation of information acquisition
of health care and patients has had an increasing emphasis. Despite the earlier authoritative
doctor-patient relationship, a need for an equal, cooperation-based communication has emerged
and there are so many digital healthcare projects to achieve this (Koskova 2015).
Information acquisition on the internet has allowed patients that based on the increasingly
available medical information they acquire information about their condition, become part of
patient communities, ask for second opinions, and become committed helpers of their doctors in
their disease (Meskó et. al 2017).
This can be especially true for patients with rare diseases, where a diagnosis might take even
a decade, the patient needs lifelong condition maintenance and treatment, if it is available. While the proportion of patients with rare diseases is low compared to the whole of society, the number of such patients is approximately 30 million in Europe (EURORDIS), which means patients
and their relatives need not only a harmonized health care system, but extensive information so
that they can live with the rare disease with less difficulty.
The aim of our study was to present the options of information acquisition in the social
media, focusing on Twitter, via an interdisciplinary and social approach. In this study therefore
we carried out a Big Data based social media analysis based on #Asthma and #CysticFibrosis
databases of the Symplur corporation. This study results contain the complete online communication of 7 years (2012-2019) regarding these hashtags. The analysis has few levels including
semantic research, stakeholder and hashtag review, engagement, and the whole tweet activity
exploration. -
Health-related information gathering practices among outpatients
124-138Views:59Introduction: Obtaining health information is an important part of health behaviour. However, there is limited data available about information gathering habits of patients. Aims: To identify different patient groups according to their information gathering habits.
Methods: Questionnaire survey among potential patients in an outpatient clinic in Budapest. The survey consisted of the following domains: sociodemographic data; habits of visit a doctor; communications method with a specialist; use of technical devices.
Results: The survey was completed by 260 patients (36,2% men; 63,8% women). Patients primarily get medical information from their doctors, followed by the internet, where different websites and Facebook groups are the most common sources of information. Mostly they use the internet for checking their symptoms and complaints, however searching for data about their physicians and healthcare institutions are uncommon. Patients who are young, active workers, highly educated are more active, while elderly patients and widows search less information on the internet. Conclusions: There are socio-demographic groups who are underinformed by digital healthcare related issues. Audited websites and social media releases could play an important role in
the information gathering process of patients, and also supplement patient-doctor relationship. -
Mechanisms of power, victimization and autonomy in the health care system
60-80Views:42The aim of this paper is to describe power relations, doctor-patient relationships among the
many ongoing changes in health care from sociological point of view. This paper is based on
interviews with 17 people who work in various fields of health care. To conduct the interviews as
well as to write the paper, a number of concepts and theoretical approaches were resorted to:
Dominique Memmi’s ’delegated biopower’, Eve Bureau and Judith Hermann-Mesfen’s notion of
’contemporary patient’, François Dubet’s concept of institutional programme as well as results of
Hungarian health sociology. The main focuses of interest of the paper are role models in health
care, the characteristics and consequences of new doctor-patient relations, their manifestations
in Hungary as well as potentials of defencelessness and autonomy in Hungarian health care. -
„Women Question” in the Political Parties’ Discourse in Post-Revolution Tunisia (2011–2014)
127-145Views:54For more than fifty years, the Tunisian political system has been considered as a so-called secular system that had provided women with many rights in education, healthcare and in economic and political sectors, besides that woman friendly family laws reforms After the overthrown of Ben Ali regime on 14th of January 2011, the Tunisian society witnessed an economic, social and political significant transformation. A new Islamic-secular discourse have been raised debates both in public and private sphere, women’s rights have been one of the incendiary topics of these debates. Therefore, with the participation of the Islamists in political life, the country has faced a new political dynamic which made the pollical scene complex and ambiguous. In this context, discourse analysis is a very important and crucial to be used as a method to approach to the research main question. Some leaders’ speeches, events which took place during the democratic transition are examined and analyzed in order to serve the research’s analytic interest through the relevant materials.
