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• Social media communication in the digital medical space: A #cysticfibrosis és a #Asthma Big Data összehasonlító elemzése

  143-180.

  Simon Sara

  Views:

  53

  In the environment of 21st century technology, the transformation of information acquisition
  of health care and patients has had an increasing emphasis. Despite the earlier authoritative
  doctor-patient relationship, a need for an equal, cooperation-based communication has emerged
  and there are so many digital healthcare projects to achieve this (Koskova 2015).
  Information acquisition on the internet has allowed patients that based on the increasingly
  available medical information they acquire information about their condition, become part of
  patient communities, ask for second opinions, and become committed helpers of their doctors in
  their disease (Meskó et. al 2017).
  This can be especially true for patients with rare diseases, where a diagnosis might take even
  a decade, the patient needs lifelong condition maintenance and treatment, if it is available. While the proportion of patients with rare diseases is low compared to the whole of society, the number of such patients is approximately 30 million in Europe (EURORDIS), which means patients
  and their relatives need not only a harmonized health care system, but extensive information so
  that they can live with the rare disease with less difficulty.
  The aim of our study was to present the options of information acquisition in the social
  media, focusing on Twitter, via an interdisciplinary and social approach. In this study therefore
  we carried out a Big Data based social media analysis based on #Asthma and #CysticFibrosis
  databases of the Symplur corporation. This study results contain the complete online communication of 7 years (2012-2019) regarding these hashtags. The analysis has few levels including
  semantic research, stakeholder and hashtag review, engagement, and the whole tweet activity
  exploration.

• Health-related information gathering practices among outpatients

  124-138

  Regina Molnár

  Zoltán Sági

  Zsuzsanna Fejes

  Kálmán Törőcsik

  Béla Köves

  Edit Paulik

  Views:

  59

  Introduction: Obtaining health information is an important part of health behaviour. However, there is limited data available about information gathering habits of patients. Aims: To identify different patient groups according to their information gathering habits.
  Methods: Questionnaire survey among potential patients in an outpatient clinic in Budapest. The survey consisted of the following domains: sociodemographic data; habits of visit a doctor; communications method with a specialist; use of technical devices.
  Results: The survey was completed by 260 patients (36,2% men; 63,8% women). Patients primarily get medical information from their doctors, followed by the internet, where different websites and Facebook groups are the most common sources of information. Mostly they use the internet for checking their symptoms and complaints, however searching for data about their physicians and healthcare institutions are uncommon. Patients who are young, active workers, highly educated are more active, while elderly patients and widows search less information on the internet. Conclusions: There are socio-demographic groups who are underinformed by digital healthcare related issues. Audited websites and social media releases could play an important role in
  the information gathering process of patients, and also supplement patient-doctor relationship.