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• New ways in exporting Society: The potential of donation.based digital data collection

  6-26.

  Kmetty Zoltan

  Views:

  64

  More and more digital data is being generated every day, and more and more social science
  analyses are using Twitter, Instagram, or Facebook data. Many international and national studies
  have already explored the social science opportunities and dilemmas raised by the phenomenon
  of ‚big data’ - but the issue of ‚access to data’ has only been touched upon tangentially. And
  access to data is becoming increasingly difficult. What can we do if market players close the
  access to their data, and, if we find data available, the Research Ethics Board tells us to stop? The
  answer is simple: go to the users and ask them for the data. This approach is what the literature
  calls data donation. This paper will describe the data donation approach in detail, focusing on
  how researchers can access data through users on the current major Western platforms. The
  practical feasibility of data donation access will be illustrated based on a domestic pilot study.

• Social media communication in the digital medical space: A #cysticfibrosis és a #Asthma Big Data összehasonlító elemzése

  143-180.

  Simon Sara

  Views:

  53

  In the environment of 21st century technology, the transformation of information acquisition
  of health care and patients has had an increasing emphasis. Despite the earlier authoritative
  doctor-patient relationship, a need for an equal, cooperation-based communication has emerged
  and there are so many digital healthcare projects to achieve this (Koskova 2015).
  Information acquisition on the internet has allowed patients that based on the increasingly
  available medical information they acquire information about their condition, become part of
  patient communities, ask for second opinions, and become committed helpers of their doctors in
  their disease (Meskó et. al 2017).
  This can be especially true for patients with rare diseases, where a diagnosis might take even
  a decade, the patient needs lifelong condition maintenance and treatment, if it is available. While the proportion of patients with rare diseases is low compared to the whole of society, the number of such patients is approximately 30 million in Europe (EURORDIS), which means patients
  and their relatives need not only a harmonized health care system, but extensive information so
  that they can live with the rare disease with less difficulty.
  The aim of our study was to present the options of information acquisition in the social
  media, focusing on Twitter, via an interdisciplinary and social approach. In this study therefore
  we carried out a Big Data based social media analysis based on #Asthma and #CysticFibrosis
  databases of the Symplur corporation. This study results contain the complete online communication of 7 years (2012-2019) regarding these hashtags. The analysis has few levels including
  semantic research, stakeholder and hashtag review, engagement, and the whole tweet activity
  exploration.

• Where to go, net generation? Lifestyle-based segments of the Hungarian youth

  124-142.

  Suto Anna

  Views:

  89

  My study attempts to explore the lifestyle-based segments of the Hungarian youth through an
  innovative methodology based on social media data, incorporating the dimension of digitization
  into the creation of lifestyle groups. The examination of the segments’ lifestyle attitudes is
  assisted by a review of the related theoretical milieu approaches, international and Hungarian
  empirical milieu researches