Bass (2004) examined the living conditions of families raising severely disabled children in the framework of national data collection. His research results reflect the circumstances nearly twenty years ago. The present study aims is to compare the research results of Bass to the present living conditions of interviewees who live in Berettyóújfalu in the 2020s, revealing the changes which have occurred in their lifestyle, family relationships, and future plans in the course of the past years. We used a qualitative interview to reveal the characteristics of the living conditions of ten families living in Berettyóújfalu. According to our research results, there are positive tendencies in the families’ social situation, relationship system or in the economic activity of the parents, but they still face hardship and drawbacks in accessing public services and ensuring their child’s long-term future.