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Dementia and family. The role of Alzheimer cafe in reducing the burden of caregiving families
34-46.Views:200In the last years, the international researches have turned towards families caring for elderly people with dementia /see the works of Zarit et al. 1985, 2005; Aneshensel et al. 1995; and Kaplan 1996/. The majority of these researchers analysed the stress burden of the caring family member and its consequences, role conflicts, and the tensions in the caregiving family (Zarit et al. 1985; Aneshensel et al. 1995; Kaplan 1996; Zarit et al. 2005). The revelation that in terms of Romania, we know nothing or almost nothing about the burden of families caring for elderly people with dementia and its effect on the primary carer, played was an important factor in the choice of topic. This is why, in a vast empirical analysis, in Transylvania, 50 interviews and questionnaire surveys were made with people caring for elderly with dementia in their own homes and 50 families whose relatives with dementia have been moved to a long-term residential home in the past 12 months from the time of the survey. Gathering data took three years (2015–2017). The research included the inquiry interview with the primary caregiver family member, in which we assessed the functional barriers and the psychosocial difficulties (Szabó 2000). The analysis of the levels of social skills was built upon this, and it unfolded the main characteristics of self-sufficiency, existing social skills, and social adaptation. This survey pointed out the everyday tasks in which the client requires help. With regard to family care, we have also analysed the independent living ability of people with dementia. These three angles offered the guidelines for the assessment of “objective burden” of the caring family member. Reviewing the distribution of caring tasks within the family is based on this, which helps us finding out who the key persons are, the ones undertaking the primary caregiving duties. For analysing the formation of roles within the family, we have devised our own criteria (Szabó–Kiss 2015). Starting from the objective burden, in regard to the “subjective burden”, we have obtained valuable indications about the emotional effect of caregiving family member. The detailed assessment of self-sufficiency through which we have analysed the measure of functional degradation of people living with dementia, was added to the devices of the analysis (Szabó 2000). The internationally approved scale of memory and behavioural problems (Zarit 1985) is connected to this, which measures the distractive attitude of the person living with dementia and its effect on the primary caregiver. The survey of the primary caregiver’s burdening is also connected (Zarit 1985), and so is the assessment of the negative and positive attitude towards the caregiving tasks (Farran et al. 1999). A six-step focus group is added to the devices of the research, in which the primary caregivers, by hearing each other’s cases and following thematic questions, open up more easily about the critical periods of caregiving and the pivotal factors of institutional placement.
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Staff Training and Stress in Long Term Care Facilities Special Care Units for Alzheimer's Elders
43-44Views:49Objective:
Special Care Units (SCU) in long term care health facilities are named to indicate "unique to diagnosis" or a level of care. The purpose of this study was to explore perceptions among caregivers and licensed nurses in selected nursing homes in Ohio and Pennsylvania and New York, as they pertained to the differences in care to Alzheimer's elders in SCUs. It examined the education and experience of staff and the satisfaction of this staff as it pertained to stress and wages.Background:
Long-term caregivers often experience stress, resulting in "burn-out" as a consequence of limited training, levels of care required, cognitive decline of elders and family expectations. The caregivers, on SCUs, environmentally designed for the elders with cognitive decline, need specialized training in the physical and mental dimensions of the various forms of dementia, Alzheimer's type.Methods:
The study used a qualitative research design with a survey questionnaire and one-on-one interviews with administrators and human resource directors. A pilot study of SCUs in Ohio and Pennsylvania and New York was initiated. The population was the employees of these SCU. The levels of employees questioned included: Executive director/Administrator, nurses, nurse aides, housekeepers and activities staff, laundry and social service workers. The procedure was standardized to enhance the reliability of the data. The respondents were notified in advance of the specific application of their answers and were afforded the opportunity to receive a monetary donation to the SCU of their respective facilities.
An Eden Alternative Home, with a program of goals and missions characterizing enhancement of an elder's life, a home-like environment and family-centered staff and care, in a very rural area of Pennsylvania, was also engaged to contrast and compare the hypotheses of the study.Results:
On the SCU, less than 5 percent of the staff had received training specific to the care of the Alzheimer's elders. In the Eden Home, 100 percent of the staff had received training specific to the care of the Alzheimer's elders. On the SCU, less than 18 percent were satisfied with the quality and quantity of specialized and extensive training. In the Eden Home, 100 percent of the staff was satisfied with their specific training. On the SCU, using a Leiken scale, more than 55 percent felt that they should receive higher wages. In the Eden home, the results were the same. However, the longevity of the employees was 13.5 years as opposed to only 3.25 years in the SCU in other homes.Conclusion:
These findings suggest there is a need to examine, expand and intensify the training of all caregivers on a special unit for the elders afflicted with dementia, Alzheimer's type. -
Alzheimer's disease in the context of social work from the perspective of family caregivers
29-30Views:13In the context of rising quality of life and improving living conditions, as well as improving health care, people are now living to a higher age than in the past. Alzheimer's disease is the most common form of dementia in European countries. As a result of the development of the disease, individuals are often dependent on the help and care of other people, in most cases family members. This care interferes with the functioning of the family, so monitoring the needs and assistance for family members is essential.
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Családi (informális) gondozást segítő rendszerek Magyarországon
34-48Views:220The member states of the European Union have to face the challenge of demographic aging. Taking the demographic characteristics of the member states, there are no essential differences in either the current or in the expected future development of the proportion of elderly people. Ageing affects several areas of the welfare regimes, but it is usually the health and pension systems and personal services that are highlighted. This paper deals with a special area of personal services, the family (informal) care and the support of carers in Hungary. The study introduces definitions of the informal care, welfare policies on family caregivers, the systematization attempts of the care policy in the member states, it analyzes the recent past and currently perceived care policy processes and ideologies, and finally describes the specific situation in the former Communist countries through an example of a Hungarian care policy. The basic idea of the article is that although the demographic challenges are similar, but the service policy and the development of the institutional systems show significant differences in each country. In addition to the underdeveloped institutional service system in the different countries, the post-Communist countries lack the supporting tools of the caring family members.
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Quality of life of elderly stroke patients and their caregivers
38-39Views:17Stroke represents a major societal representation as well as economic problem in an individual's life. The question arises in connection with the life of the patient oneself as well as in one’s whole family. Stroke is one of the most common diseases affecting people at an old age.
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Palliative and Hospice Social Work Roles in the U.S.
18Views:60Palliative care services worldwide continue to grow, primarily in response to a human rights approach and to respond to the aging of the population, increasing prevalence of chronic illnesses and cancer mortality. While there is recognition in the WHO definition of palliative care that not only physical, but also psychological, social and spiritual aspects of care must be part of services provided, how these are addressed varies greatly by country and region of the world.
In the U.S., social work services are mandated to be provided by hospice organizations seeking funding from Medicare (governmental insurance for people over age 65) and supports the tenets of the palliative care philosophy to provide person-centered holistic care. The role of palliative and hospice social workers is highly aligned with the values of the profession centered on the dignity and worth of all humans and the commitment to improving quality of life throughout life and especially at the end of life. Older adults make up the overwhelming majority of hospice recipients in the U.S. and attention to their daily needs and those of the family caregivers is essential to maximize quality of life.
This presentation will focus on the roles of social workers in the U.S., particularly with older adults, in various palliative care settings and how this may compare to roles across the globe.