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• DISADVANTAGES AND SUPPORT: THE PLACE AND ROLE OF THE SOCIAL CARE SYSTEM IN THE LIVES OF PERSONS WITH DISABILITIES AND THEIR FAMILIES

  63-76

  Emese Balázs-Földi

  Views:

  417

  According to the data of the census in 2011, the majority of people with disabilities live in private households, while a smaller proportion of them live in institutional care. The number of families raising a child with disabilities is over 62 thousand. Research results show that providing and caring for a family member with disabilities puts a particularly heavy burden on families. Social policy instruments play a significant role in reducing the burdens of the affected social group. The present study provides an overview of the system of social benefits and services which aids the everyday lives of persons with disabilities and their families caring for them. It presents the current types of social policy instruments which support persons with disabilities and their families caring for them. We investigate whether the currently available social policy instruments are able to promote the social participation and integration of people with disabilities and their families.

• SIBLING CARE - SIBLINGS CARING FOR ADULTS WITH INTELLECTUAL DISABILITIES

  111-121

  Ildikó Pető

  Views:

  499

  The increasing life expectancy of adults with intellectual disabilities has raised new questions and challenges for families. Depending on the severity of their condition, people with intellectual disabilities need support from their families and environment to vary degrees throughout their lives. They depend on their family members, which addiction is a new problem as parents get older, and care will be the responsibility of siblings who are already living independent lives, sometimes geographically far away. Sibling care should be interpreted differently than when it is performed by a parent or a paid carer, it is more emotionally complex, its content and direction are diverse. We know not too much about sibling caregivers, we only have hypothetical answers to the questions based on a small number of studies or research in similar areas. This paper aims to provide an overview of the situation and motivations of adults who care of and take responsibility for their siblings with intellectual disabilities, and of their role and interaction of the various influences that help them understand. Getting to know siblings is necessary in order for the support system of the special education and social policy to adapt properly to the situation of the  - unfortunately - barely ‘visible’ population.