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• Supporting Background, Caring Practices and Perceptions of Care in Narratives of Parents of Children Living With Autism Spectrum Disorder

  Eva Nagy

  Views:

  44

  This study explores the childrearing practices of parents raising children with autism spectrum disorder (ASD), using D. H. Morgan’s family practices framework (Morgan, 1996, 2001, 2002, 2004, 2011), the concepts of care capital and Bowlby’s thoughts on caringscapes (Bowlby, 2012, 2017, 2019). It also addresses questions of care and autonomy within the context of disability. The author’s dual role as both researcher and parent plays a significant part in the research process. Using Grounded Theory methodology, the study involved 19 interviews with Hungarian parents of children with ASD. The findings reveal that parenting practices are shaped by the lack of formal care. Deficiencies in institutional support shift additional care responsibilities to the primary sphere of care (Lynch, 2007), intensifying parental care burdens. Parents are forced to stretch already limited resources, which can restrict both their own and their child’s experience of autonomy. Furthermore, the availability of formal care alone does not ensure a sense of agency or control for parents. Some parents with greater resources extend their roles beyond individual caregiving. They challenge dominant perceptions of autism and strive to reshape local caringscapes, effectively “rewriting” societal understandings of otherness and disability.

   

• Specific Needs of Families of Deaf Parents and Hearing Children

  39-45

  Eva Klimentová

  Vít Dočekal

  Views:

  3886

  The aim of the paper is to describe specific aspects of deaf parenting of hearing children, based on an interpretation of research findings concerning the target group. Deaf parents, isolated from the verbally communicating majority by their sensory disability, face the challenge of raising and preparing hearing children for life. Our research based on semi-structured interviews with both deaf parents and hearing children demonstrates, however, that these parents do not primarily describe their parenthood as difficult or complicated. They are reconciled to their handicap and its consequences and use tools in the social environment to overcome the disadvantages of deaf parenting. Some “children” (all our respondents were adults reflecting on their childhood) describe, in contrast, their experience as a gradual reverse of natural family roles, with children eventually navigating their parents around the hearing world. These results indicate the need for further activities with these target groups in social work.